Welcome to EUROMYASTHENIA [ www.euromyasthenia.org ]
The objective of this site is to disseminate research results from the European project EuroMyasthenia and to encourage communication on the rare disease, Myasthenia Gravis. In order to identify the partners involved, please click on the map.
To get information about the project and the network activities, please click on the titles in the Informations and Scientific activities side-boxes.
To get advices about Myasthenia Gravis in your country, please visit the FAQ section.
MG researchers need your help!
MG researchers need your help in locating identical twin pairs where one twin is affected with MG and the other is not, to carry out a study of the contribution of environmental and genetic factors to MG. As you know, both MG and identical twins are rare, so any such subjects are especially precious. For further information, read more…
You might remember that back in August 2009, we announced that a second edition of the book “Myasthenia Gravis and Related Disorders”, edited by Dr. Henry Kaminski, had been published. We would like to inform you now that Asociatia Nationala Miastenia Gravis Romania, the MG Patients’ Association of Romania, has decided to undertake a translation of the book which will be published by Springer. In case some of you wish to partner with the publisher for other translations, here is the contacting email address: permission.heidelberg@springer.com
It is edited by one of EuroMyasthenia collaborating partners, Dr. Premkumar Christadoss, and many of its chapters were written by associated and/or collaborating partners of the network.
It is edited by one of EuroMyasthenia collaborating partners, Dr. Premkumar Christadoss, and many of its chapters were written by associated and/or collaborating partners of the network.
It is with great sadness that we announce the death of Josipa Gazibara, the first chairperson of the European Federation of MG patients’ Associations (EuMGA). Josipa, a myasthenia patient herself, worked tirelessly towards the improvement of MG patients’ quality of life, writing several MG-related books, organizing summer schools and programs, and initiating regional associations. Josipa’s dream was the creation of a European federation, bringing together MG patients’ associations throughout Europe and she was instrumental in its establishment. She was elected as chairperson during the first EuMGA annual meeting in Paris at the end of last year.
Josipa was also the representative of the Coatian MG Patients’ Association in the EuroMyasthenia network. We shall miss her…
It is with great sadness that we announce the death of Josipa Gazibara, the first chairperson of the European Federation of MG patients’ Associations (EuMGA). Josipa, a myasthenia patient herself, worked tirelessly towards the improvement of MG patients’ quality of life, writing several MG-related books, organizing summer schools and programs, and initiating regional associations. Josipa’s dream was the creation of a European federation, bringing together MG patients’ associations throughout Europe and she was instrumental in its establishment. She was elected as chairperson during the first EuMGA annual meeting in Paris at the end of last year.
Josipa was also the representative of the Coatian MG Patients’ Association in the EuroMyasthenia network. We shall miss her…
Restricted to clinicians, researchers, and patient associations who are partners in the 'EuroMyasthenia' network (Associated and Collaborative Partners).
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EuroMyasthenia project
EuroMyasthenia project
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