You might remember that back in August 2009, we announced that a second edition of the book “Myasthenia Gravis and Related Disorders”, edited by Dr. Henry Kaminski, had been published. We would like to inform you now that Asociatia Nationala Miastenia Gravis Romania, the MG Patients’ Association of Romania, has decided to undertake a translation of the book which will be published by Springer. In case some of you wish to partner with the publisher for other translations, here is the contacting email address: permission.heidelberg@springer.com
It is edited by one of EuroMyasthenia collaborating partners, Dr. Premkumar Christadoss, and many of its chapters were written by associated and/or collaborating partners of the network.
It is with great sadness that we announce the death of Josipa Gazibara, the first chairperson of the European Federation of MG patients’ Associations (EuMGA). Josipa, a myasthenia patient herself, worked tirelessly towards the improvement of MG patients’ quality of life, writing several MG-related books, organizing summer schools and programs, and initiating regional associations. Josipa’s dream was the creation of a European federation, bringing together MG patients’ associations throughout Europe and she was instrumental in its establishment. She was elected as chairperson during the first EuMGA annual meeting in Paris at the end of last year.
Josipa was also the representative of the Coatian MG Patients’ Association in the EuroMyasthenia network. We shall miss her…
A new section, the Patients’ Corner, for patients to share their story/hint(s)/idea(s) towards a better quality of life with MG. Please submit your story/hint(s) via the “Submit a story” webpage
Cette zone est dédiée aux cliniciens, chercheurs et associations de patients qui sont partenaires dans le réseau 'EuroMyasthenia' (associés et collaboratifs).