Bienvenue sur EUROMYASTHENIA [ www.euromyasthenia.org ]
Bienvenue sur le site EuroMyasthenia
- www.euromyasthenia.org -
L'objectif de ce site est de disséminer les résultats du projet Européen EuroMyasthenia et de communiquer sur la maladie de la Myasthénie. Pour identifier les partenaires impliqués dans le réseau, veuillez cliquer sur la carte ci-contre.
Pour obtenir des informations sur le projet et sur les activités du réseau, veuillez cliquer sur les titres dans les boites Informationset Activités scientifiques.
Pour obtenir des conseils concernant la Myasthénie, merci de consulter la section FAQ.
Ce jeune site est pour l'instant plus complet dans sa version anglophone. Vous pouvez basculer dans cette dernière version en cliquant ici.
You might remember that back in August 2009, we announced that a second edition of the book “Myasthenia Gravis and Related Disorders”, edited by Dr. Henry Kaminski, had been published. We would like to inform you now that Asociatia Nationala Miastenia Gravis Romania, the MG Patients’ Association of Romania, has decided to undertake a translation of the book which will be published by Springer. In case some of you wish to partner with the publisher for other translations, here is the contacting email address: permission.heidelberg@springer.com
It is edited by one of EuroMyasthenia collaborating partners, Dr. Premkumar Christadoss, and many of its chapters were written by associated and/or collaborating partners of the network.
It is edited by one of EuroMyasthenia collaborating partners, Dr. Premkumar Christadoss, and many of its chapters were written by associated and/or collaborating partners of the network.
It is with great sadness that we announce the death of Josipa Gazibara, the first chairperson of the European Federation of MG patients’ Associations (EuMGA). Josipa, a myasthenia patient herself, worked tirelessly towards the improvement of MG patients’ quality of life, writing several MG-related books, organizing summer schools and programs, and initiating regional associations. Josipa’s dream was the creation of a European federation, bringing together MG patients’ associations throughout Europe and she was instrumental in its establishment. She was elected as chairperson during the first EuMGA annual meeting in Paris at the end of last year.
Josipa was also the representative of the Coatian MG Patients’ Association in the EuroMyasthenia network. We shall miss her…
It is with great sadness that we announce the death of Josipa Gazibara, the first chairperson of the European Federation of MG patients’ Associations (EuMGA). Josipa, a myasthenia patient herself, worked tirelessly towards the improvement of MG patients’ quality of life, writing several MG-related books, organizing summer schools and programs, and initiating regional associations. Josipa’s dream was the creation of a European federation, bringing together MG patients’ associations throughout Europe and she was instrumental in its establishment. She was elected as chairperson during the first EuMGA annual meeting in Paris at the end of last year.
Josipa was also the representative of the Coatian MG Patients’ Association in the EuroMyasthenia network. We shall miss her…
Cette zone est dédiée aux cliniciens, chercheurs et associations de patients qui sont partenaires dans le réseau 'EuroMyasthenia' (associés et collaboratifs).