I was diagnosed with M.G. over ten years ago after moving to Spain. I had an immediate diagnosis after one eye lid refused to open properly. Having worked in the N.H.S forover 30 years I had never heard of the name of this illness and thought he was speaking Spanish. I was on a Cardiac Team but I don't think that's any excuse. After my thymus gland was removed and all the tests done very quickly, I am now living a wonderful life after about six years of gradual improvement. I take Mestinon every 4/6 hours and 5mgs of steroids. I would have loved some outside communication during the bad days in the beggining. I have a wonderful Neurologist in Malaga, Dr. Romero, who has explained and helped me on the slow but successful path back to a near normal life. Anyone who feels low must always know that tomorrow can and often is a better day. My only problem is at the time I would have had my period. After the menopause I have at least two days of muscle weakness and tiredness, if it is cloudy( low pressure)  then I am sometimes worse. Do any of you other M.G.s have this happen to them and what can I do to help myself? More Mestinon gives me nothing but the trots, less and I sleep all day and night.

Best Regards Barbara Rope