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Le projet EuroMyasthenia Le projet EuroMyasthenia Partenaires associés Partenaires associés Partenaires collaborant au réseau Partenaires collaborant au réseau Associazione Italiana Miastenia Onlus (MIA) [EN] Croatian Myasthenia Gravis Association Cyprus Myasthenia Gravis Association [en] Czech Myasthenia Gravis Association [en] Danish Myasthenia Gravis Association [en] Association Française contre les Myopathies (AFM) [en] Association des Myasthéniques Isolés et Solidaires (AMIS) German Myasthenia Gravis Association (DMG) [en] Hellenic Myasthenia Gravis Association [EN] Italian Association against Myasthenia (AIM) [en] Orphanet [en] Romanian Myasthenia Gravis Association [en] Swedish Neurological Diseases Association (NHR) [en] UK Myasthenia Gravis Association (MGA) [en] Adams David [en], France Beeson David [en], United Kingdom Brenner Talma [en], Israel Christadoss Premkumar [en], United States de Carvalho Mamede [en], Portugal Deymeer Feza [en], Turkey Evoli Amelia [en], Italy Eymard Bruno [en], France Farrugia Maria Elena [en], Scotland Fuchs Sara [en], Israel Hantai Daniel [en], France Illa Isabel [en], Spain Kostera-Pruszczyk Anna [en], Poland Maddison Paul [EN], United Kingdom McConville John [en], Ireland Martins da Silva Ana [en], Portugal Melms Arthur, Germany Milanov Ivan [en], Bulgaria Mouly Vincent [en], France Pitha Jiri [en], Czech Republic Saoudi Abdel [en], France Saruhan-Direskeneli Güher [en], Turkey Schaeffer Laurent [en], France Sharshar Tarek [en], France Sostarko Marija [en], Croatia Souroujon Miri [en], Israel Tuzun Erdem [en], United States Verschuuren Jan [en], The Netherlands Zagar Marija [en], Croatia Lettre d'information Lettre d'information Comment utiliser ce site ? Comment utiliser ce site ? To submit [en] To submit [en]
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What is the difference between a "Visitor", a "Member", or a "Writer"?
- Visitors can navigate through the different menus to get information.
- Visitors who want to respond to an article, give/exchange useful information etc. need to become a Member to access the interactive services (Guestbook, Poll, sending small messages to another user who is on line, …; see Website Submission in “How to use this website?” if you want to submit an article/news etc. to be posted on the website).
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Date de création : 04/08/2006 - 2:35 PM
Dernière modification : 03/08/2007 - 1:09 PM
Catégorie : Comment utiliser ce site ?
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Réaction n°2 |
par zinzan le 16/11/2008 - 1:58 PM
I was very encouraged on reading this article. The development of the network and the sharing of knowledge and information can only be the most positive things in the pursuit of a breakthrough into the cause/causes of MG. In particular it is good to know that epidemiological studies are taking place and being coordinated in an effort to find links that may help in the quest for a cure. Despite the lack of funding for research the quest goes on and that is a comfort to sufferers. |
Réaction n°1 |
par dennismckeith
le 17/05/2008 - 00:15 AM
Hi is there any body with general myasthenia gravis, had a pace maker fitted. Plus suffers with high blood pressure that makes your pulse drop to 32-40 I would like to here from you Thank you Dennis |
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Cette zone est dédiée aux cliniciens, chercheurs et associations de patients qui sont partenaires dans le réseau 'EuroMyasthenia' (associés et collaboratifs). Entrez (vous devez avoir un login et un mot de passe spécial)
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